What a day..


I am tired of being nice..lol Back to my PMS mode..

Anyway, today was one crappy happy day. It started out 8 am . After I dropped my car to get brakes fixed I was told that sensors has to be fixed, and this and that and overall your car is crap right now…. And I ended paying 780 dollars for brakes, oil changes, filter changes, more oil changes and some other stuff. Engine oil was kind of black so I thought – WTF, Lets just spend some money here. ANd air filter looked discusting – again my first thought was – WTF have I been breathing in the whole time. yuck….
After 3 hours in some ecno or whatever I went to see my doctor because I have enlarged lymph nodes and I have been hysterically stressed about them ( of course my dh has no clue what to say). SO there I go to see my doctor. Sadly he was not in. There was someone else covering for him. Someone I do not like very much especially If I see that someone first time….
She looks at me, touches my neck. asks me to blow my nose, checks my ears, tonsils, asks me to say AAAAAA and then checks something on his digital medical book- HMh. HEr response-
DRY mouth is side effect of your Celexa – ( thank you very much, but I have been on it for a while and I have been doing greatm thank you very much again).
HMH. OK. YOU have enlarged lymph nodes ( I think I told her that first place). There are 2 reasons why you have them. First- You most likely had some upper respiratory infection that has not cleared up, OR you had recent acne break out ( of course she was hinting to my big zit sitting on my for head).
Honestly- I wanted to smack her and tell her- LOOK Lady, My lymph node is fuckin painful,and I feel like I need to drink up whole ocean… And you are telling me that my ZIT is causing my lymph node to grow that fast that painful..

BUT instead I asked- SO what to you recommend??? Try some zhitromax and if your lymph nodes are still swollen in 2 weeks come back and we are going to take a closer look. MY first panicy first thought was- OMG I WILL BE DEAD IN 2 weeks because you are curing my cancer with acne medication… But then I came to my senses and told myself.- Just calm down diana… She is just doctors assistand.. It is not her fault if I die before 2 weeks is up… .hahah.

Anyway, right now I am hoping that that lump goes away and I can live happily ever after and I do not have to come back from ” other side” and haunt her …..

Then we had Ronald McDonald meeting. Kinds of like- How is RMDH helped you while your kids are seeking treatment. In general I like RMDH. It is close to hospital , great kids library, allrighty kitchen, lots of magazines to read, bed full of bed bugs and roaches… and few rats… ( outside, I seen them). AND i told them that I hate 24 hour rule, and I told them that they should change it… So I am hoping they are at least thinking about working out some kind of plan with hospital to monitor who is on treatment, those can stay away for longer and who is off treatment have to check in in 24( compromize).. But then Few spanish families started complaning about 4 family rule. They want AT LEAST 5 if not six, and they want to house visitors and so on… I wanted to stand up and tell her- LOOK LADies and Gentlemen- how is housing 6 people under those conditions is going to help your kid???? But I kept my mouth shut,,, I just YAAAWWWNNEEEDD… And end of meeting I got 20 dollar vons gift certificate- I made 20 dollars today. 🙂 WOHOOOO.
Right now I can not fall asleep because I got mild fever and I am trying to stay awake to see if it goes away … AND I never had DZ, but after seeing what they have to offer , I dream about it…

Enough bad stuff…

I decided that I become an angel and NEVER even talk trash about other people… never ever everever ( YEAH, right, like that ever going to happen haha).
But todays blog is about things I like( Most of you know that I love my family, so I am not going to talk about them). This post is entirely about products I love.

Since I love make up I have tried way to many different brands and there are still way to many to go.. But I absolutely love Sheer Cover BASE PERFECTOR.
http://www.sheercover.com/ I currently switched from Bare Minerals to Sheer Cover and I LOVE SHEER COVER SO MUCH MORE. Their products are much more gentle on skin and give awesome coverage. This is link with Bare Minerals. http://www.bareminerals.com/

I also loved Sheer Cover mascara – AWESOME PRODUCT. I love that it does not stain my lids and when I wash it , it comes off in clumps, instead of tinting my whole face black.

FOr eye make up base I love Lancome product. It is very silky and creamy. I just apply to my eye before I apply make up and it keeps my make up in place for whole day. very good product. 🙂
http://www.lancome-usa.com/makeup/eyeshadow/aquatique.htm

Thanks to Kathy Now I am hooked to Crabtree-Evelin rosewater body wash.
http://store.crabtree-evelyn.com/148-ros36930011.html

I like that it is not overpowering and my skin smells and feels fresh all day long. I also use their perfumes which are sweet but not over powering sweet. 🙂 LOVE IT… Thanks Kathy.:)

OH, I have to go,, regina is asking for Lunch… She want to have spagetti with marinara sauce..

Di

Jalle see aeg..


Jah, tapselt nii nagu ma arvasin. Reginal koik verenaitajad madalad madalad madalad. ANC on 0 , Hemoglobiin oli alla 8, Platelets oli ka alla 50 000. Nii et saime verd kui platelets. haiglast saime valja kusagil kella 5 paiku.

Nyyd oleme jalle sealmail et ootame ” suure Ponevusega” millal need seletamatud ja saladuslikud palavikud hakkavad endast marku andma.. Algul vaheke ja siis korraga POOOOHFFFF 39.

Aga noh, loota ju ikka voib et koik laheb mooda ilma viperusteta…:):):):

Mitte kohe ei taha 19 sept haiglas veeta. Regina saab 19 sept 8 aastaseks.:):):) Mingi aeg tagasi saatsin ma ka evite kaudu kutse valja. Kuid paljusid ma nimeliselt ei kutsu , Kui LA kandi headel tuttavatel on tahtmist ja energian Laguna Nigueli kanti soita, SIIS OOTAN TEID.
kui aga viitsimist pole , siis hypake mingi aeg siitsest RMD majast labi.:) OOTAME!!!

Kolmas round lopetatud.


Haiglast saime valja juba esmaspaeval , kuid komas ja viimane Kemo round loppes alles tana. viimane selles mottes et me ei pea haiglas enam Kemot saama. Alates oktoobris hakkame keemiat saama Out patient paasil. Paar rohtu jaab minu kaela Reginale kodus anda ja korra nadalas kaime haiglas siis Iv Keemial jarel.
25 sept. “korjatakse” reginal stem Cell’id , kasvatatakse neid ja kui temalt piisavalt saadakse, siis tehakse talle 3 stem Celli transplanti. Nii et kemo ja transplantiga peaks asjad yhele poole saama kusagil Detsembris.
hetkel laheb tal jalle vaga hasti. Kuigi ANC ja veri on jalle alanemas, jatkub tal kovasti energiat et meie kallal norida ja Gabrieli nutma ajamiseks..

Kolmapaeval on Regina Synnipaev.!!! PEAME Kella neljaks haiglasse minema, kuna tal on jalle vereproovid. Ikka kolm korda nadalas ja nii kuni detsembri lopuni…. VUUUUUIIIIHHHH..

Koik kes te LA ymbruses elate. PALUN Pange aeg CHLAsse kinni ja minge annetage verd ja Platelets. Reginale tuleb jargmise paari nadala jooksul vahemalt 4 siirdamist.

3kolmandal Ringil.

Jah. Eile saime siis lopuks haiglasse voodikoha ( laupaeval). Nii kui neljanda korruse liftist valja astusime kuulsime odede ja arstide sooja vastuvottu- REGINA IS HERE!!!. Ja siis hakkasid koik itsitama ,,kuna nad teadsid meie suhet palatiga 430B. JAH, saime oma “lemmik” toa endale jalle. Kuid seekord oleme taitsa rahul. Naabird molemal pool on vaiksed ja vaga viisakad 🙂

Eile oosel siis kusagil 11 alustati kemoga. See oo oli Regina jaoks raskem kui eelmised roundid. Ta oksendas kohe mitu mitu korda ja tana yles argates on ka veel vaheke haiglase olekuga… Toidu isu on lainud…. KUID vahemalt joudis ta selle kodus oldud nadalaga oma kaalu taastada ja nyyd kaalub ta 20, 5 kilo.

Tana oosel saab ta ka veel chemot IV kaudu ( cyclophosphomide) Homme ( esmaspaeval peaksime mingi aeg siit haiglast valja saama ).

Muud nagu polegi juhtunud.

Haid uudiseid kah sekka…..

No nii.. Tana sai siis Reginaga haiglas kaidud . Pidime kyll raviga alustama, kuid ” teatud”pohjustel lykkame Chemo Ravi reedesse.
Mul on nii monigi hea uudis tanase paevaga soetatud-
ESIMESEKS HEAKS UUDISEKD- KASVAJAD KAHANEVAD. KOVASTI KOHE. Vahi rakud on kohe 50% kahanenud. Kui regina aju oli eelnevalt kaetud White Matter’iga, siis nyyd see Valge materjal kuhugi ara kadunud, MIS ON SUUREPARANE UUDIS. JA selle valge materiali kadumine viis endaga kaasa ka terve hunniku vaikesi vahi pesakesi.. Nii et hetkel on Regina ajus kusagil 2-3 erineva suurusega kasvajat, mis ka kahanevad aegapidi. Jah, Ime on syndimas… Meie usume.

KUNA Reginal laheb yllatavalt hasti on arsit meiega lopuks Luuydi transplandist raakima hakanud. umbes 20 paeva parast tahavad nad Regina stem cell’e koguda. Kuna regina PICC line seda aga ei voimalda, peame Reginale panema selle Double Hickman’ liini ( mis laheb sisse tapselt rindade vahelt ja sydamelahedase veeni sisse. See on vaheke suurem ja voimsam kui PICC , ja kuna reginale tahetakse teha vahemalt 3 stem Cell transplanti oleme nous Hickman liiniga. SAMAS– kui Reginalt ei saada teatud kogus stem celle ( tanu sellele et tal juba 4 transplanti on olnud), peame me Bone Marrow registrisse Regina kirja panema ja siis selle kaudu doonori leidma. See on vaheke Keerulisem… Kuna Regina on aasia/valge rassi segu, on koige toenaolisem et ka doonor leitakse selliste segude keskelt.. KUID segusid on Bone Marrow Registris vaga vahe kirjas, ja sellega doonori leidmine on vahem toenaoline. :(:( LOODAME et talt saadakse sobiv arv stem celle ja me ei pea registri kallale minema 🙂

Samuti arutasime kas UUS operatsioon on toenaoline, kuna kasvajaid on nyyd vahem, nad on vaikesemad ja pole koige hullemas kohas… Arsti vastus oli selle peale et Yritame Kemoga kasvajatest lahti saada…. Kuid samas hoiatati mind juba ette ka. Kuigi selline on meie plaan, ei tea me isegi seda mis jargmine nadal tuua voib. Votame koike samm samult ja rahulikult… LOOTUST ON.

See kemo round jaab reginal viimaseks “korge annuseliseks”. Peale seda hakkame kemot tegema Outpatientina. Mis tahendab seda et anname seda talle kodus, ja
haiglas “rohutoas”. See tapab samuti immun systeemi, kuid mitte nii jubedalt kui need 4 rohtu mida ta nyyd sai ja hakkab reedel saama.

Nii palju siis meie kandist. UUDISED ON HEAD!!!! Reginale nyyd jaksu vaja. Ees ootavad 3 vaga pingerikast kuud tais suuri kysimarke……

TANAN teid veelkord koikide kirjade ja kaartide, ja joonistuste, ja pakikeste eest 🙂 NEid tuleb yllatavalt iga paev kas siis kaks voi yks… Tore on koikide teie haid soove lugeda.
Erilised tanud Lillile kes on Reginale pea iga paev yhe kaardi saatnud. :):):)